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Post-COVID syndrome (long COVID) Network

29 Sep 2023

Sign up to the Post-COVID syndrome (long COVID) Network

Have you contracted COVID-19 and not really shaken off the effects of the virus or have you been diagnosed with Long COVID and are now living with the long-term effects? Evidence is showing a growing number of people who contract COVID-19 cannot shake off the effects of the virus months after initially falling ill. Symptoms are wide-ranging and fluctuating, and can include breathlessness, chronic fatigue, “brain fog”, anxiety and stress.

The long-term effects of COVID-19 are often referred to interchangeably as long COVD and post COVID syndrome. The National Institute for Clinical Excellence (NICE)/Scottish Intercollegiate Guidelines Network/Royal College of General Practitioners guidance on managing long-term effects of COVID-19 (updated November 2021) gives the following clinical definitions below:

  • ongoing symptomatic COVID-19: signs and symptoms of COVID-19 from four to 12 weeks
  • post COVID-19 syndrome: signs and symptoms that develop during or after COVID-19 and continue for more than 12 weeks and are not explained by an alternative diagnosis.

We are setting up a Long COVID network where you can meet and chat with other people who are living with the long-term effects of the virus.

More information 

If you would like to join this network or feel that one of your staff members or colleagues may benefit from being part of the network, then please go to our Health Networks page and request to join the Long COVID channel. Alternatively, you can contact the EDI team and request to join.